The Swamps of Jersey ~ a Springsteen forum :: Lost In The Flood :: '10 years burnin' down the road'

The Swamps of Jersey ~ a Springsteen forum
Lost In The Flood
'10 years burnin' down the road'

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Loquacious

Location: Missing Frankie so much.
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'10 years burnin' down the road'

I can't believe that it has been 10 years since I first joined the original of this board. So much has changed and so much has stayed the same.

My actual anniversary date was July 23 but I was held in the hospital against my will on that date. Note, whenever I am in the hospital it is always against my will.

I either fell and hit my head and then had a seizure or I had a seizure first and then hit my head on July 19. Someone used to tell me that he would always catch me before I fell when I warned him of how clumsy I was; well he certainly has not kept that promise. Either way I wound up with a minor closed head injury and I looked like Mickey Rourke for a few days. Keith found me in mid-seizure in the bathroom and took me to the nearest hospital which is only a 4 to 5 minute drive from our house. The close proximity and the fact that they are never busy is why I go there. It's not because they have cutting edge, state of the art medical care.

They did a CT scan of my head and some blood work and sent me home after a few hours. My condition worsened the next day and Keith hauled me back there again. This time I was extremely confused, very uncooperative and quite out of my mind. I had it in my head that Reece and Hershey were both going to be permanently deaf (just because they were with me when I had the seizure) if I did not take immediate action to save them. I also thought that the TVs, computers and other electronics were not going to work anymore due to the seizure but I could replace those things. I could not replace the dogs.

Well, don't ever get in-between me and my dogs because if I think they are in danger I will fight like a badger for them. Keith had on one of his English Springer Spaniel T-shirts and I thought if I could just spit at the dog on the shirt that my dogs would be OK but things had to be done in a certain sequence and I could never get the entire thing right so I never did spit at the dog on Keith's shirt. It was a good thing that my mouth was so dry because I also tried to spit at the nurses and the other health professionals and I never got one off due to my dry mouth. I was horrible and they had to restrain me. I think I made up for every patient that has ever spit at me, pinched and twisted my flesh, sworn or thrown things at me etc. I kept saying "My dogs are going to be deaf and it will be all your fault!!" I considered that Keith was on the evil team as well because he was listening to them and not me. I am so embarrassed and ashamed now and I plan to go back to the hospital (with a basket of from the Chocolate Harbour) to apologize in a few days. Dan Quayle was right; it is a terrible thing to lose one's mind!

They transferred me via ambulance down to their sister hospital in Detroit because they didn't have a neurologist on staff. I tried to get them to transfer me to one of the hospitals in Porch Urine because I already have a neurologist that I adore (I wish he could handle all of my medical issues for me!) and he works out of both hospitals in Porch Urine. I asked them to send me to Mercy because PHH is [email protected]#$ and I had horrible care there when I had surgery on May 25. They didn't listen and I wound up in Detroit, farther away from my dogs and my goal of saving their hearing. I became more and more agitated the farther away from home I got and the woman that was riding in the ambulance with me started crying. I was bad, but I was not that bad! I know they get patients like that frequently enough. I certainly did. I think she was crying due to her own issues and I am not going to explain all of that because it would take forever. I will simply say that I hope she gets some help before she accidentally kills herself or someone else. I know what she was up to and she knew that I knew. I was the wrong person to pull that on.

There were two black guys in the ER at the Detroit hospital that I kept very amused for several hours; they also made me laugh quite a lot. I was determined to get out and get to my dogs and the nurses wound up putting me in heavy restraints. I guess they don't use 4 point leathers anymore. I actually had a patient chew through those once and escape and I was totally amazed (and super impressed) by that because those leathers were at least an inch thick! I was thinking of him when I was trying to get out of my restraints. I thought "If he could get out of those leathers and escape when he was right across from the nurse's desk then I can do this, find the car and go to the dogs." The restraints they use now are a true bugger to try to get out of as it is; I almost got one arm free when Keith went to the bathroom but he got back before I could progress any further. I believe that I called him every name in the book that day. He is going to be up for sainthood pretty soon.

Anyways, I had to stay at the hospital for 5 days. That is the longest I have ever had to stay; I busted out 2 nights after my surgery in May and my Dr. wanted to keep me for at least 4 days. She listens to me though. I think I could have left after 3 days this time but the Dr.s couldn't get their [email protected]#$ together and decide to discharge me. I have no idea of whom my Dr. actually was or what conclusions they came to. I saw so many Dr.s and residents there. I had resigned myself to having to stay once I got admitted to the floor and I didn't give the nurses any problem there. Well, that is not exactly true. I did rip out my IV and I tore off the wires for the cardiac monitor quite a few times but I wasn't doing it to be a brat; I was just still confused. I did receive very good care there which surprised me because I expected horrible care like I received when I had surgery in May. The food was actually good too but it still wasn't my idea of a nice hotel.

I had hoped that the Batman shooter incident was all in my head....I watched so much television coverage of that. Sadly, it wasn't just in my head although I was relieved to find out that he had had killed only 12 people. I thought he had killed 70. That guy is not something you should watch when you are off of your nut.

Typically, I am writing too much so I am going to start a new post. :brd2:

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We'll forget the sun in her jealous sky as we lie in fields of gold

3/Aug/12, 7:58 am

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Loquacious

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Re: '10 years burnin' down the road'

Crap, i just wrote for over an hour and a half and lost every single thing. I am too tired to repeat it all now but maybe I will later on in the day.

Most of you know this from facebook but I have not been doing well for quite some time and I had surgery in May to remove my tubes and ovaries. I should have had them take them out when they took my uterus when I was 38 years old. The CT scan and ultrasounds of my pelvis showed a mass on the left side but nothing looked alarming; you can usually tell by certain factors if something is malignant or not by the scans but biopsy is the only way to know for sure. My CA-125 was within normal ranges as well and that is a big tool they use to diagnose and track the progress of ovarian cancer.

I was 95% certain that I had this over a year ago when I first became so sick. Reece started to act really oddly around me around February. She would cry to get out of the room if I was in it. I finally figured out that it was my breath that was bothering her. Dogs are 87 to 98% more accurate than CTs, ultrasounds and MRIs at detecting certain cancers by smell. When Reece, a dog that loves to be in my arms or on my lap at all times, started to avoid me I was 100% certain that I had ovarian cancer.

It took ages for the pathology reports to come back after I had my surgery; they had to send them for confirmation to University of Michigan and one other place. I do have ovarian cancer. It is granulosa cell tumor ovarian cancer Reece was right and the Dr.s were wrong. I had Reece sniff and sniff my breath about 2 weeks after the surgery and she gave me a clean bill of health. She sniffed me several times and then she licked my hand and wagged her tail.

I met with the head gyn/oncologist at Karmanos Cancer Institute in early June. I did not like him and I refer to him as Dr. God because he is one of those dr.s that think they are infallible. I am going to stick with him anyways because I do think he knows his stuff and I also don't want to start all over again with a new Dr. It took over 6 weeks for them to discuss my case at the Tumor Board and they finally got back to me with their recommendations. I have an extremely rare form of ovarian cancer. Only about 1000 women in the U.S. will be diagnosed with it each year. The good thing is that it is not usually as aggresive as other forms of ovarian cancer and it is usually caught in earlier stages than the other types of ovarian CA. The bad thing is that it is so rare that there is no set treatment protocols for it. I now belong to an ovarian cancer support group and I have met other women that have been diagnosed with the same rare form of ovca. Some of those women have been through multiple rounds of chemo but the cancer keeps coming back. Some of the women are doing fine and some of them have died.

My Dr. is not recommending chemo or radiation for me at this time. That is good because I was not going to agree to it anyways. I have done an exhaustive amout of research on granulosa cell tumors and there is no evidence to support that chemotherapy has any effect on this type of tumor. Chemo targets cells that grow quickly and the cells in this type of tumor grow very slowly. Right now we are just going to 'watch' it. I will have to have CT scans of the abdomen and pelvis every 3 months along with blood tests for Inhibon A and B for an indefinite period of time.

If it comes back and it most likely will (it is just it's nature), surgery is still the best option to treat it. When my brain got all nutty a week or so ago I worried that I might have already had mets to the brain.

I truly don't spend too much time thinking about this. Things could be so much worse. I booked a nice hotel in Hamilton, Ontario and now I just have to get tickets for Bruce for Jessie, Peapod and I. The show is in October. I am really looking forward to some special time with my girls and I won't be fussing about my ovarian cancer at all unless I think I can shamelessly use it to my advantage to get in the front row for Bruce!

I am tired and headed to bed now. BTW, the dogs were just fine. Nothing was wrong with their hearing and the TVs, computers etc. were all okay as well. {sg}

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We'll forget the sun in her jealous sky as we lie in fields of gold

3/Aug/12, 11:11 am

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David Nerman Profile
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Greenhorn

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Re:

Seems it's been 10 years since I've stumbled through here. Has Queen Spacebuggy finally banned everyone?

31/Dec/14, 12:04 am

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sunshine13 Profile
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Re: '10 years burnin' down the road'

Oh Spacebuggy we did have so much fun, hard to imagine 10 years in the making. I do wish you well in your journey AND. Never give up hope!

And your long posts...you still got it!

Last edited by sunshine13, 1/Mar/15, 11:02 pm

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Anima gemella

31/Dec/14, 7:23 pm

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Re: '10 years burnin' down the road'

Hey sunshine girl, were you laggingforbruce at one time? Nice tan anyway. When I first posted here did so because of the "10 years burnin" down the road" without reading anything. After doing so I pray to God barefoot you're cancer free. Damn I hate that fuckin' horrible disease! Wish you could come back to the ghost town of a "discussion board" and let me and the two other fine folks here know. All the best! Love you... seen Tore around?

20/Feb/15, 7:58 pm

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